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Southern Regional Center for Children and Youth with Special Health Care Needs (CYSHCN)
Southern Regional Center for Children and Youth with Special Health Care Needs (CYSHCN)
The Southern Regional Center for CYSHCN, funded by the State Maternal Child Health block grant, benefits families with CYSHCN and the providers who support them through providing information, referral and follow up services; promoting a parent-to-parent support network and family leadership development; and increasing local capacity of community-based systems of support.
Contact:
Tim Markle
608-262-8033
tmarkle@wisc.edu
DD Community Training and Consultation
DD Community Training and Consultation
Provides service to family members, volunteers, direct care providers, special education teachers, transportation providers, para-professional and professional service providers from all settings providing services in Dane County for people with developmental disabilities. Provision of a variety of training, consultation and educational opportunities individual, small group, and larger audiences related to developmental disabilities.
Contact:
Michael Truman
mltruman@wisc.edu
Genetics Systems Integration Hub
Genetics Systems Integration Hub
The Waisman Center University Center for Excellence in Developmental Disabilities (UCEDD) is a partner within the Genetics Systems Integration Hub of the Wisconsin Title V Children and Youth with Special Health Care Needs Program. The purpose of the Genetics Hub is to ensure that genetics information and resources are integrated with public health systems to support individuals with genetic disorders, their families, and health care professionals.
Contact:
Sara Zoran, MS, CGC, Genetics Systems Integration Hub Coordinator
608-262-0182
Nourishing Special Needs Nutrition Network (WIC)
Nourishing Special Needs Nutrition Network (WIC)
This contract with the state Birth Defects Surveillance Program provides training and technical assistance to WIC nutritionists in the state of Wisconsin, including a monthly series of educational teleconferences, an annual workshop on nutrition topics for children with special needs, and an updated nutrition toolkit available publicly and for all WIC nutritionists in the state.
Contact:
Anne Bradford Harris
608-263-5796
harris@waisman.wisc.edu
Wisconsin Care Integration Initiative
Wisconsin Care Integration Initiative
The Wisconsin Care Integration Initiative (WiCII) project aims to increase family-centered, integrated systems of care for children with autism spectrum disorders (ASD) and other developmental disabilities (DD), with a focus on medically underserved areas and populations. WiCII is partnering with primary care practices to provide family navigation services to medically underserved families of children with/at risk for ASD/DD; increase provider knowledge and skill related to early identification, referral, and supporting families to access services; and increase access statewide to culturally and linguistically competent educational resources to improve family self-efficacy in navigating systems of care. To build provider capacity for early identification, referrals, and care in local communities, WiCII supports a tele-mentoring approach to provide education and case-consultation to practitioners called ECHO Autism (Extension for Community Healthcare Outcomes). Safe While you Wait is supported by WiCII and Magic Pebble, and addresses safety concerns and equisp families with the devices and resources they need to ensure their child’s safety in advance of their Waisman Center clinics evaluation appointment.
Contact:
Gail Chödrön
608-890-0145
chodron@wisc.edu
Youth Health Transition Initiative for CYSHCN
Youth Health Transition Initiative for CYSHCN
This project funded by the state Title V CYSHCN Program (MCH Block grant to WI ) provides leadership to the CYSHCN network to support youth with special health care needs to transition to adult health care; providing training and technical assistance to community members and service systems , supporting QI grants to health care providers and systems; and linking with the national “Got Transition” initiative through the healthtransitionWI.org website.
Contact:
Anne Bradford Harris
608-263-5796
harris@waisman.wisc.edu
You can also view Our Programs in an Alphabetical Annotated List of Programs.