Outreach

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Act Early Ambassador

Act Early Ambassador

This project is designed to develop a network of state-level experts to improve early identification practices. Act Early Ambassadors serve as state liaisons to the Act Early Initiative and act as a community champion or change agent to increase awareness activities and improvement of early identification practices.

Contact:
Gail Chodron
608-890-0145
chodron@wisc.edu

Children and Youth With Special Health Care Needs (CYSHCN) Southern Regional Center

Children and Youth With Special Health Care Needs (CYSHCN) Southern Regional Center

CYSHCN LogoThis project provides resources for the Waisman Center UCEDD to serve as the Southern Regional Center for the Wisconsin Children With Special Health Care Needs Program (State Title V Agency). In that role, the Center: 1) Provides information, referral and follow up services so that all families with children with special health care needs, and providers residing in the service area will have access to complete and accurate information related to the needs of their special needs child. 2) Promotes a parent-to-parent support network to assure that all families have access to parent support services. 3) Works to increase the capacity of local health departments and other local agencies, such as schools, to provide service coordination through education, training and ongoing technical assistance.

Contact:
Anne Bradford Harris
608-263-5796
harris@waisman.wisc.edu

To learn more visit: Children and Youth With Special Health Care Needs Regional Center

DD Community Training and Consultation

Developmental Disabilities Community Training and Consultation

People sitting at a picnic tableProvides service to family members, volunteers, direct care providers, special education teachers, transportation providers, para-professional and professional service providers from all settings providing services in Dane County for people with developmental disabilities. Provision of a variety of training, consultation and educational opportunities individual, small group, and larger audiences related to developmental disabilities.

Contact:
Rachel Weingarten
608-890-0777
weingarten@waisman.wisc.edu

To learn more visit: Developmental Disabilities Community Training and Consultation

Family Action Network

Family Action Network

Mother and Young SonThe Family Action Network provides information about opportunities for education, training and leadership development to members who would like to contribute their voice to improve systems for people with disabilities and special health care needs in Wisconsin. Members are encouraged to share their ideas as informed, effective and knowledgeable participants in policy and systems change to help achieve family/self-determination, independence, productivity, integration and inclusion in all facets of community life. Systems change happens when family members are partners in the development, implementation and evaluation of policies and systems of supports and services. Information shared on this list does not represent a position or endorsement of specific positions by the list serv host. This listserv is collaboration between the Waisman Center, University Center of Excellence on Developmental Disabilities, Family Voices of Wisconsin, Disability Rights Wisconsin and the Board for People with Developmental Disabilities.

Contact:
Liz Hecht
608-263-7148
hecht@waisman.wisc.edu

Genetics Systems Integration Hub

Genetics Systems Integration Hub

Genetics in Wisconsin LogoThe Waisman Center UCEDD is a partner within the Genetics Systems Integration Hub of the Wisconsin Title V Children and Youth with Special Health Care Needs Program. The purpose of the Genetics Hub is to ensure that genetics information and resources are integrated with public health systems to support individuals with genetic disorders, their families, and health care professionals.

Contact: 
Sarah Zoran
608-262-0182
zoran@wisc.edu

For more information: Genetics in Wisconsin

Living Our Visions-Dane

Living Our Vision-Dane

Young Adult making clay potLOV-Dane is a grassroots organization of individuals with disabilities, families and community members building fulfilling, community centered lives for all citizens. LOV is engaging in collective action, mobilizing individual and community assets, increasing civic engagement, building reciprocal relationships of caring and mutual support, and developing inclusive and sustainable employment, recreation and living opportunities.

Contact:
Amanda Bell
608-516-4285
bell@waisman.wisc.edu

To learn more visit: Living Our Vision-Dane

Nourishing Special Needs Nutrition Network (WIC)

Nourishing Special Needs Nutrition Network (WIC)

WIC Logo

The purpose of the Wisconsin WIC CYSHCN Nourishing Special Needs Network is to improve access to nutrition services and support for infants and children with birth defects and other special health care needs in Wisconsin. Building on the existing capacity of the Women Infants and Children (WIC) Program, this Network is facilitating the recruitment and training of a Children and Youth with Special Health Care Needs (CYSHCN) WIC Nutrition Consultant(s) in each Division of Public Health Region.
To learn more visit: WIC Toolkit

Policy and Systems Changes

Policy and Systems Change

The UCEDD supports a variety of efforts at the state level that provide input to policy makers on a wide range of topics that impact the lives of people with disabilities and their families. We do this primarily through participation on coalitions, advisory committees and state councils. The UCEDD is a member of the Survival Coalition of Statewide Disability Organizations and contributes to written documents from the Long-Term Care, Medicaid and Children’s Issues groups.

Contact:
Liz Hecht
608.263.7148
hecht@waisman.wisc.edu

Systems Change for Children/Youth with Special Needs

Systems Change for Children with Disabilities and Special Health Care Needs

Family Voices LogoThe purpose of this project is to document needs that individuals with disabilities and families experience as they navigate health and community-based LTSS.  The project will develop recommendations and participate in depth with DHS administration and/or Survival coalition efforts that address at least two needs each year.   Periodic reporting to Family Voices is pooled with other information to assist them in their ongoing advocacy/systems change efforts with their partner agencies, one of which is the Waisman Center UCEDD.

Contact:
Liz Hecht
608-263-7148
hecht@waisman.wisc.edu

Wisconsin Care Integration Initiative

Wisconsin Care Integration Initiative

Young Boy coloringThe Wisconsin Care Integration Initiative (WiCII) project aims to increase family-centered, integrated systems of care for children with autism spectrum disorders and other developmental disabilities. WiCII will demonstrate innovative strategies to address goals of the Wisconsin Act Early State Plan to enhance screening, referral for diagnostic and early intervention services, and time enrollment in treatment services for children with ASD/DD, with a particular focus on building community-based capacity in urban and rural communities.

Contact: 
Maureen Durkin
608-263-7507
mdurkin@wisc.edu

Wisconsin PROMISE Grant

Wisconsin PROMISE Grant

Promise Grant LogoWith funding from the WBPDD, Waisman is supporting various activities related to Promise Grant Wisconsin (Promoting Readiness of Minors in Supplemental Security) – a 5 year multi-agency effort to increase the education, career and income outcomes of children/youth with special health care needs receiving SSI.

Contact:
Molly Cooney
608-266-0266
molly.cooney@wisconsin.gov

To learn more visit: Promise Grant Wisconsin

Youth Health Transition Initiative for CYSHCN

Youth Health Transition Initiative for CYSHCN

Health Transitions Wisconsin LogoThe Waisman Center UCEDD is a partner within the Youth Health Transition Initiative for CYSHCN of the Wisconsin Title V Children and Youth with Special Health Care Needs Program. The purpose of the Youth Transition Hub is to design and support efforts to assure that youth with special healthcare needs receive the services necessary to transition to adult healthcare, work, and independence.  For more information link to http://www.healthtransitionwi.org/ and support efforts to assure that youth with special healthcare needs receive the services necessary to transition to adult healthcare, work, and independence.

Contact:
Anne Bradford Harris
608-263-5796
harris@waisman.wisc.edu

For more information link to: Health Transition Wisconsin

You can also view Our Programs in an Alphabetical Annotated List of Programs.